Information for Cleft Teams
 

Data Collection Milestones for 2018

For 2018 Annual Report

• November 2018: Review of report at Cleft Development Group Meeting
  

• December 2018: Publication of 2018 Annual Report
  

For Summer/Autumn 2019 Audit Day Reports

• 3 May 2019: Data collection cut off for 2019 Audit Day summary reports.
  

• June 2019: Reports start being presented at Quad-Centre and Tri-Centre Audit Days (specific dates TBC).
  

Outcome data required for 2018 Annual Report by 29 June 2018

 

We will report outcomes for patients born in 2004 to 2012. For patients whose outcome data are available and have not previously been submitted, please submit the following information required for each birth year.

 

Outcome	2004	2005	2006	2007	2008	2009	2010	2011	2012
Weight	✔	✔	✔	✔	✔	✔	✔	✔	✔
Height	✔	✔	✔	✔	✔	✔	✔	✔	✔
Decayed, missing or filled teeth in primary dentition (dmft)	✔	✔	✔	✔	✔	✔	✔	✔
5-year old index score (‘complete UCLP’ cases only)	✔	✔	✔	✔	✔	✔	✔	✔
Speech (CP/UCLP/BCLP cases only)						✔	✔	✔
Psychology (incl. TIM and SDQ)								✔

Outcomes are not required where patients have declined consent.

The Outcomes Record data download allows you to review the data that has been submitted to date by birth year and outcome type - please contact us if you require help using the download.

 

Information Leaflet and Parental Consent Forms

 
The following documents have been prepared to help you gain documented consent from parents or carers who are speakers of English, Welsh, Polish and Urdu.

CRANE Database Information Leaflet - August 2018 - English

CRANE Database Data Linkage Leaflet - August 2018 - English

CRANE Database Parental Consent Form - August 2018 - English
 

The Welsh, Polish and Urdu translations below are of our previous information leaflets and consent documents - updated versions of the 2018 documents will be made available when completed:

CRANE Database Information Leaflet - April 2013 - Welsh
CRANE Database Parental Consent Form - October 2010 - Welsh

CRANE Database Information Leaflet - April 2013 - Polish
CRANE Database Parental Consent Form - October 2010 - Polish

CRANE Database Information Leaflet - April 2013 - Urdu
CRANE Database Parental Consent Form - October 2010 - Urdu
 
CRANE Data Dictionary - detailing CRANE data collected

 

The following documents detail the data collected by the CRANE Database:
 

• CRANE Database - Data Dictionary
  
• CRANE Data Collection Forms - to aid CRANE data collection on patient registration (Form 1) and outcomes (Form 2)
• Speech Data Collection Form 2014