Information for Cleft Teams
Data Collection Milestones for 2019
For 2019 Annual Report
28 June 2019: Data collection cut off for 2019 Annual Report.
October / November 2019: Review of report at Cleft Development Group meeting (specific date TBC).
November / December 2019: Publication of 2019 Annual Report (specific date TBC).
Outcome data required for 2019 Annual Report by 28 June 2019
We will report outcomes for patients born in 2004 to 2013. For patients whose outcome data are available and have not previously been submitted, please submit the following information required for each birth year.
Outcome
| 2004
| 2005
| 2006
| 2007
| 2008
| 2009
| 2010
| 2011
| 2012
| 2013
|
Weight at 5 years
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
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Height at 5 years
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
|
Decayed, missing or filled teeth in primary dentition (dmft) at 5 years
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
|
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Decayed, missing or filled teeth in primary dentition (dmft) at 10 years
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| ✔
| ✔
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5-year old index score (‘complete UCLP’ cases only)
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
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Speech (CP/UCLP/BCLP cases only) at 5 years
|
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|
| ✔
| ✔
| ✔
| ✔
| ✔
| ✔
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Psychology (incl. TIM and SDQ) at 5 years
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| ✔
| ✔
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Outcomes are not required where patients have declined consent.
The Outcomes Record data download allows you to review the data that has been submitted to date by birth year and outcome type - please contact us if you require help using the download.
Information Leaflet and Parental Consent Forms
The following documents have been prepared to help you gain documented consent from parents or carers who are speakers of English, Welsh, Polish and Urdu.
CRANE Database Information Leaflet - August 2018 - English
CRANE Database Data Linkage Leaflet - August 2018 - English
CRANE Database Parental Consent Form - August 2018 - English
The Welsh, Polish and Urdu translations below are of our previous information leaflets and consent documents - updated versions of the 2018 documents will be made available when completed:
CRANE Database Information Leaflet - April 2013 - Welsh
CRANE Database Parental Consent Form - October 2010 - Welsh
CRANE Database Information Leaflet - April 2013 - Polish
CRANE Database Parental Consent Form - October 2010 - Polish
CRANE Database Information Leaflet - April 2013 - Urdu
CRANE Database Parental Consent Form - October 2010 - Urdu
CRANE Data Dictionary - detailing CRANE data collected
The following documents detail the data collected by the CRANE Database: