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The Cleft Registry and Audit NEtwork

Information for Cleft Teams
 

Data Collection Milestones for 2017

 
For Summer/Autumn 2017 Audit Day Reports

  • June 2017: Reports start being presented at Quad-Centre and Tri-Centre Audit Days

 

For 2017 Annual Report

  • Friday 1 September 2017: Data Collection cut off for 2017 Annual Report analyses (previously 14 July 2017)
  • November 2017: Review of report at Cleft Development Group Meeting
  • December 2017: Publication of 2017 Annual Report

 

Outcome data required for 2017 Annual Report by 1 September 2017

 

We will report outcomes for patients born in 2004 to 2011. For patients whose outcome data are available and have not previously been submitted, please submit the following information required for each birth year.

 

Outcome

2004

2005

2006

2007

2008

2009

2010

2011

Weight

Height

Decayed, missing or filled teeth in primary dentition (dmft)

 

5-year old index score (‘complete UCLP’ cases only)

 

Speech (CP/UCLP/BCLP cases only)

     

 

Outcomes are not required where patients have declined consent.

The Outcomes Record data download allows you to review the data that has been submitted to date by birth year and outcome type - please contact us if you require help using the download.

 

Information Leaflet and Parental Consent Forms

 
The following documents have been prepared to help you gain documented consent from parents or carers who are speakers of English, Welsh, Polish and Urdu.

CRANE Database Information Leaflet - May 2016 - English
CRANE Database Data Linkage Leaflet - May 2016 - English
CRANE Database Parental Consent Form - May 2017 - English 

 

Versions of the English language information leaflets are also available for printing in A5 (below), and can be printed in grayscale or black & white (by amending your printer settings) if prefer not to print colour.

CRANE Database Information Leaflet - May 2016 - English - A5 Version
CRANE Database Data Linkage Leaflet - May 2016 - English - A5 Version

The Welsh, Polish and Urdu translations below are of our previous information leaflets and consent documents - updated versions of the 2016 documents will be made available when completed:

CRANE Database Information Leaflet - April 2013 - Welsh
CRANE Database Parental Consent Form - October 2010 - Welsh

CRANE Database Information Leaflet - April 2013 - Polish

CRANE Database Parental Consent Form - October 2010 - Polish

CRANE Database Information Leaflet - April 2013 - Urdu
CRANE Database Parental Consent Form - October 2010 - Urdu
 
CRANE Data Dictionary - detailing CRANE data collected

 

The following documents detail the data collected by the CRANE Database:
 


CRANE Data Collection Forms, to be added soon. In the meantime, if copies are needed urgently, please contact crane@rcseng.ac.uk
 

CRANE Database Parental Consent Form_October 2010_Welsh
PDF
CRANE Database Parental Consent Form_October 2010_Polish
PDF
CRANE Database Parental Consent Form_October 2010_Urdu
PDF
CRANE Database - Data Dictionary - May 2015
PDF
Speech Data Collection Form 2014
PDF
CRANE Database Information Leaflet_May 2016_English_A5
PDF
CRANE Database Data Linkage Leaflet_May 2016_English_A5
PDF
CRANE Database Parental Consent Form_May 2017_English v1
PDF