Information for Cleft Teams
Data Collection Milestones for 2018
For 2018 Annual Report
Friday 29 June 2018: Data Collection cut off for 2018 Annual Report analyses
October 2018: Review of report at Cleft Development Group Meeting
December 2018: Publication of 2018 Annual Report
For Summer/Autumn 2019 Audit Day Reports
Outcome data required for 2018 Annual Report by 29 June 2018
We will report outcomes for patients born in 2004 to 2012. For patients whose outcome data are available and have not previously been submitted, please submit the following information required for each birth year.
Outcome | 2004 | 2005 | 2006 | 2007 | 2008 | 2009 | 2010 | 2011 | 2012
|
Weight | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
Height | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
Decayed, missing or filled teeth in primary dentition (dmft) | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
|
5-year old index score (‘complete UCLP’ cases only) | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ | ✔ |
|
Speech (CP/UCLP/BCLP cases only) |
|
|
| | | ✔ | ✔ | ✔
|
|
Psychology (incl. TIM and SDQ) |
|
|
|
|
|
|
| ✔
|
|
Outcomes are not required where patients have declined consent.
The Outcomes Record data download allows you to review the data that has been submitted to date by birth year and outcome type - please contact us if you require help using the download.
Information Leaflet and Parental Consent Forms
The following documents have been prepared to help you gain documented consent from parents or carers who are speakers of English, Welsh, Polish and Urdu.
CRANE Database Information Leaflet - May 2016 - English - Under further development. Update to be published August 2018
CRANE Database Data Linkage Leaflet - May 2016 - English - Under further development. Update to be published August 2018
CRANE Database Parental Consent Form - May 2017 - English - Under further development. Update to be published August 2018
Versions of the English language information leaflets are also available for printing in A5 (below), and can be printed in grayscale or black & white (by amending your printer settings) if prefer not to print colour.
CRANE Database Information Leaflet - May 2016 - English - A5 Version
CRANE Database Data Linkage Leaflet - May 2016 - English - A5 Version
The Welsh, Polish and Urdu translations below are of our previous information leaflets and consent documents - updated versions of the 2016 documents will be made available when completed:
CRANE Database Information Leaflet - April 2013 - Welsh
CRANE Database Parental Consent Form - October 2010 - Welsh
CRANE Database Information Leaflet - April 2013 - Polish
CRANE Database Parental Consent Form - October 2010 - Polish
CRANE Database Information Leaflet - April 2013 - Urdu
CRANE Database Parental Consent Form - October 2010 - Urdu
CRANE Data Dictionary - detailing CRANE data collected
The following documents detail the data collected by the CRANE Database: