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The Cleft Registry and Audit NEtwork

Information for Cleft Teams
 

Data Collection Milestones for 2019/20

For 2019 Annual Report

  • Data collection now closed for 2019 Annual Report (28 June 2019).

  • 11 November 2019: Review of report at Cleft Development Group meeting.

  • 30 November 2019: Publication of 2019 Annual Report.


For 2020 Summer Audit Day Report (if your Tri- or Quad-centre meeting is held June/July 2020)

These reports contain a summary of: 5-year old index, dmft, and speech score outcomes; as well as DMFT and psychology data completeness (for the birth years shown in the table below).

  • 8 May 2020: Data collection cut off for 2020 Summer Audit Day Report - if your Tri- or Quad-centre meeting is in June/July 2020.

  • June/July 2020: CRANE to supply report a fortnight before Tri- or Quad-centre meeting. 

Please note: To receive a Summer Audit Day Report, the Tri- or Quad-centre meeting organiser must contact CRANE by 30 April 2020 to request this (crane@rcseng.ac.uk).


For 2020 Annual Report

  • 26 June 2020: Data collection cut off for 2020 Annual Report.

  • October / November 2020: Review of report at Cleft Development Group meeting (specific date TBC).

  • November / December 2020: Publication of 2020 Annual Report (specific date TBC).


Outcome data required for 2020 Annual Report by 26 June 2020 

We will report outcomes for patients born in 2004 to 2014. For patients whose outcome data are available and have not previously been submitted, please submit the following information required for each birth year.

 

Outcome

2004

2005

2006

2007

2008

2009

2010

2011

 2012

2013

2014

Weight at 5 years












Height at 5 years












Decayed, missing or filled teeth in primary dentition (dmft) at 5 years












Decayed, missing or filled teeth in primary dentition (DMFT) at 10 years












5-year old index score (‘complete UCLP’ cases only)











Speech (CP/UCLP/BCLP cases only) at 5 years




 

 







Psychology (incl. TIM and SDQ) at 5 years












Outcomes are not required where patients have declined consent.

The Outcomes Record data download allows you to review the data that has been submitted to date by birth year and outcome type - please contact us if you require help using the download.

 

Information Leaflet and Parental Consent Forms

The following documents have been prepared to help you gain documented consent from parents or carers who are speakers of English, Welsh, Polish and Urdu.

CRANE Database Information Leaflet - August 2018 - English

CRANE Database Data Linkage Leaflet - August 2018 - English

CRANE Database Parental Consent Form - August 2018 - English
 

The Welsh, Polish and Urdu translations below are of our previous information leaflets and consent documents - updated versions of the 2018 documents will be made available when completed:

CRANE Database Information Leaflet - April 2013 - Welsh
CRANE Database Parental Consent Form - October 2010 - Welsh

CRANE Database Information Leaflet - April 2013 - Polish

CRANE Database Parental Consent Form - October 2010 - Polish

CRANE Database Information Leaflet - April 2013 - Urdu
CRANE Database Parental Consent Form - October 2010 - Urdu
 
CRANE Data Dictionary - detailing CRANE data collected 

The following documents detail the data collected by the CRANE Database: