The Cleft Development Group (CDG) has the overall responsibility for running the Cleft Registry and Audit NEtwork (CRANE) Database and has representation from patient groups, clinicians and commissioners.
The CDG is responsible for guidance on all aspects of the delivery of re-organised cleft care in England and Wales and, when asked, by Scotland and Northern Ireland. It gives advice to the cleft centres, to health authorities, trusts, boards, commissioning groups and consortia and to the Departments of Health in England and the devolved administrations. It represents all stakeholders in cleft care and works with all to ensure the highest quality of cleft care in the UK to all patients who need it. It inherited the responsibilities of the Cleft Implementation Group and the Cleft Implementation Monitoring Group, which were advisory groups which help implement the centralisation of cleft services after the Clinical Standards Advisory Group (CSAG) report 1998.
The CDG acts as a steering group, providing strategic governance for the project and has ultimate responsibility for the running of the CRANE database. It is responsible for providing data for cleft births and cleft treatment for England and Wales and it endeavours, with the cooperation of the health services in Scotland and Northern Ireland, to do so for the whole of the UK.
The national CRANE database had two primary functions when established:
a. The recording of all birth and demographic data related to children born in England and Wales with the congenital abnormality of clefting of the lip and/or palate, and where possible extending this to the whole of the UK and Ireland.
b. The recording of all treatment of children in England and Wales with clefts of the lip and/or palate and the outcome of such treatment, and where possible extending this to the whole of the UK and Ireland.
The Terms of Reference for the CDG (to be updated in May 2018), and further information on the CDG's governance and funding, are available as attachments (and upon request). If you have any questions about this information, please contact email@example.com
Please find below a list of current members of the CDG.
Members of the Cleft Development Group (CDG) in April 2018 (List due for review October 2018)
Cleft Development Group Minutes
CRANE Database - Cleft Development Group Minutes - October 2017
CRANE Database - Cleft Development Group Minutes - May 2017
CRANE Database - Cleft Development Group Minutes - October 2016
CRANE Database - Cleft Development Group Minutes - May 2016
CRANE Database - Cleft Development Group Minutes - October 2015If copies of earlier minutes are needed, please contact firstname.lastname@example.org