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The Cleft Registry and Audit NEtwork

The Cleft Development Group

About the Cleft Development Group (CDG)

The Cleft Development Group (CDG) has the overall responsibility for running the Cleft Registry and Audit NEtwork (CRANE) Database and has representation from patient groups, clinicians and commissioners.


The CDG is responsible for guidance on all aspects of the delivery of re-organised cleft care in England and Wales and, when asked, by Scotland and Northern Ireland. It gives advice to the cleft centres, to health authorities, trusts, boards, commissioning groups and consortia and to the Departments of Health in England and the devolved administrations. It represents all stakeholders in cleft care and works with all to ensure the highest quality of cleft care in the UK to all patients who need it. It inherited the responsibilities of the Cleft Implementation Group and the Cleft Implementation Monitoring Group, which were advisory groups which help implement the centralisation of cleft services after the Clinical Standards Advisory Group (CSAG) report 1998.


The CDG acts as a steering group, providing strategic governance for the project and has ultimate responsibility for the running of the CRANE database. It is responsible for providing data for cleft births and cleft treatment for England and Wales and it endeavours, with the cooperation of the health services in Scotland and Northern Ireland, to do so for the whole of the UK.


The national CRANE database had two primary functions when established:


a. The recording of all birth and demographic data related to children born in England and Wales with the congenital abnormality of clefting of the lip and/or palate, and where possible extending this to the whole of the UK and Ireland.


b. The recording of all treatment of children in England and Wales with clefts of the lip and/or palate and the outcome of such treatment, and where possible extending this to the whole of the UK and Ireland.


The Terms of Reference for the CDG (to be updated in May 2018), and further information on the CDG's governance and funding, are available as attachments (and upon request). If you have any questions about this information, please contact crane@rcseng.ac.uk

 

Please find below a list of current members of the CDG.  




Members of the Cleft Development Group (CDG) in April 2018 (List due for review October 2018)

Simon van Eeden
Chair, CDG
Victoria Beale
Clinical Director, North West, IoM & North Wales Cleft Network
Lorraine Britton
Lead Speech and Language Therapist, Trent Regional Cleft Lip & Palate Service
Alec Cash
Clincial Lead, South Thames Cleft Service
Chris Coslett
Specialised Planner, Women and Children's Services, Welsh Health Specialised Services
Sinead Davis
Chair, CEN for Cleft ENT and Hearing Consultant ENT Surgeon
Scott Deacon
CRANE Clincal Project Leader
Mark Devlin
Lead Clinician of Cleft Care Scotland
David Drake
Cleft Surgery Training Interface Group
Yvette Edwards
Joint Representative of CDs and Managers Group
Norman Hay
Clinical Lead, North Thames Cleft Service
Chris Hill
Northern Ireland Clinicians
Peter Hodgkinson
Clinical Lead, Newcastles Site, Northern and Yorkshire Cleft Service & Chair Cleft Centres
Nicola Hudson
Lead Clinical Nurse Specialist
David Landes
Public Health Consultant
Karine Latter
Nursing Deputy for Nicola Hudson
Kate le Marechal
Clinical Psychologist CEN
Sian Lewis
Medical Director - Welsh Health Specialised Services Committee
Kanwalraj Moor
Consultant Cleft Surgeon, Addenbrookes
Ailbhe McMullin
Specialist and Consultant Orthodontist, Royal Manchester Childrens' Hospital
Jason Neil-Dwyer
Clinical Director, Trent Cleft Service
David Orr
Cleft Services in the Republic of Ireland
Susan Parekh
Paediatric Dentistry CEN
Marie Pinkstone
Chair of the Lead Speech & Langauge Therapists (SLT) Group; and Lead SLT for North Thames Managed Cleft Network
Sandip Popat
Restorative Dentistry CEN
Jonathan Sandy
Lead of the Cleft Collective
Ian Sharp
Deputy Chair, CDG; CRG for Paediatric Services Representative; and Clinical Director, West Midlands Cleft Centre
Bill Shaw
Lead at Manchester Clinical Trials Centre
Jackie Smallridge
Consultant Paediatric Dentist, CleftNetEast
Alistair Smyth
Clinical Lead for Leads Service
David Steel
Chair Programme Director, National Service Division, NHS Scotland
David Stokes
CLAPA Chief Executive
Imogen Underwood
President, Crainofacial Society, Principal Speech and Language Therapist, Birmingham Childrens' Hospital
Jan van der Meulen
Senior Epidemiologist, Clincal Effectiveness Unit
Jennifer Williams
Deputy for Per Hall and Lead Clinical Nurse Specialist, CleftNetEast
Mike Winter
Medical Director, National Services Division, Scotland




Cleft Development Group Minutes

 

CRANE Database - Cleft Development Group Minutes - October 2017

CRANE Database - Cleft Development Group Minutes - May 2017

CRANE Database - Cleft Development Group Minutes - October 2016

CRANE Database - Cleft Development Group Minutes - May 2016

CRANE Database - Cleft Development Group Minutes - October 2015

If copies of earlier minutes are needed, please contact crane@rcseng.ac.uk

CRANE Database - Cleft Development Group Minutes - October 2015
PDF
CRANE Database Cleft Development Group Minutes May 2016
PDF
CRANE Database Cleft Development Group Minutes October 2017
PDF
CRANE Database Cleft Development Group Minutes October 2016
PDF
CRANE Database Cleft Development Group Minutes May 2017
PDF
CRANE_Governance_and_Funding_Oct17
PDF
CRANE_CDG_Terms_of_Reference_Oct17
PDF