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The Cleft Registry and Audit NEtwork
Table 3. Diagnosis time
Number (%) of CRANE-registered children born between 2000-2018, and in 2019 alone, with a cleft lip and/or palate according to the timing of diagnosis and cleft type.
Year / Cleft type Time of diagnosis in relation to birth - n (%) All
Antenatal At birth Within 72 hours ≤1 week ≤1 month ≤6 months >6 months
n % n % n % n % n % n % n %
2000-2018
5,982
43.2
5,714
41.3
238
1.7
797
5.8
368
2.7
431
3.1
311
2.2
13,841
CL
2,019
62.7
999
31.0
17
0.5
67
2.1
20
0.6
73
2.3
23
0.7
3,218
CP
123
2.2
3,740
66.4
199
3.5
689
12.2
319
5.7
305
5.4
257
4.6
5,632
UCLP
2,589
81.4
541
17.0
3
0.1
17
0.5
3
0.1
24
0.8
2
0.1
3,179
BCLP
1,145
80.7
260
18.3
2
0.1
3
0.2
1
0.1
7
0.5
-
-
1,418
Non specified
106
26.9
174
44.2
17
4.3
21
5.3
25
6.3
22
5.6
29
7.4
394
2019
386
44.5
374
43.1
51
5.9
20
2.3
18
2.1
17
2.0
2
0.2
868
CL
142
68.6
60
29.0
3
1.4
1
0.5
1
0.5
-
-
-
-
207
CP
7
2.0
258
73.7
44
12.6
16
4.6
11
3.1
13
3.7
1
0.3
350
UCLP
155
87.1
19
10.7
-
-
2
1.1
1
0.6
1
0.6
-
-
178
BCLP
73
92.4
4
5.1
1
1.3
-
-
1
1.3
-
-
-
-
79
Non specified
9
16.7
33
61.1
3
5.6
1
1.9
4
7.4
3
5.6
1
1.9
54
6,368
43.3
6,088
41.4
289
2.0
817
5.6
386
2.6
448
3.0
313
2.1
14,709
NOTE: Totals for timing of diagnosis by year(s) are presented along the top row for each grouping of years and overall total (gray lines).