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The Cleft Registry and Audit NEtwork
Table 3. Diagnosis time
Number (%) of CRANE-registered children born between 2000-2018, and in 2019 alone, with a cleft lip and/or palate according to the timing of diagnosis and cleft type.
Year / Cleft type Time of diagnosis in relation to birth - n (%) All
Antenatal At birth Within 72 hours ≤1 week ≤1 month ≤6 months >6 months
n % n % n % n % n % n % n %
2000-2018
5,983
43.2
5,714
41.3
238
1.7
797
5.8
368
2.7
431
3.1
311
2.2
13,842
CL
2,022
62.8
999
31.0
17
0.5
67
2.1
20
0.6
73
2.3
23
0.7
3,221
CP
122
2.2
3,741
66.4
199
3.5
689
12.2
319
5.7
305
5.4
257
4.6
5,632
UCLP
2,588
81.4
542
17.0
3
0.1
17
0.5
3
0.1
24
0.8
2
0.1
3,179
BCLP
1,148
80.8
259
18.2
2
0.1
3
0.2
1
0.1
7
0.5
-
-
1,420
Non specified
103
26.4
173
44.4
17
4.4
21
5.4
25
6.4
22
5.6
29
7.4
390
2019
391
44.8
372
42.6
51
5.8
20
2.3
18
2.1
18
2.1
3
0.3
873
CL
144
69.2
59
28.4
3
1.4
1
0.5
1
0.5
-
-
-
-
208
CP
7
2.0
259
73.6
44
12.5
16
4.5
11
3.1
14
4.0
1
0.3
352
UCLP
155
87.6
18
10.2
-
-
2
1.1
1
0.6
1
0.6
-
-
177
BCLP
74
92.5
4
5.0
1
1.3
-
-
1
1.3
-
-
-
-
80
Non specified
11
19.6
32
57.1
3
5.4
1
1.8
4
7.1
3
5.4
2
3.6
56
6,374
43.3
6,086
41.4
289
2.0
817
5.6
386
2.6
449
3.1
314
2.1
14,715
NOTE: Totals for timing of diagnosis by year(s) are presented along the top row for each grouping of years and overall total (gray lines).