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The Cleft Registry and Audit NEtwork
Table 3. Diagnosis time
Number (%) of CRANE-registered children born between 2000-2018, and in 2019 alone, with a cleft lip and/or palate according to the timing of diagnosis and cleft type.
Year / Cleft type Time of diagnosis in relation to birth - n (%) All
Antenatal At birth Within 72 hours ≤1 week ≤1 month ≤6 months >6 months
n % n % n % n % n % n % n %
2000-2018
5,983
43.2
5,712
41.3
238
1.7
797
5.8
368
2.7
429
3.1
310
2.2
13,837
CL
2,020
62.8
999
31.0
17
0.5
67
2.1
20
0.6
72
2.2
23
0.7
3,218
CP
123
2.2
3,738
66.4
199
3.5
689
12.2
319
5.7
304
5.4
257
4.6
5,629
UCLP
2,589
81.5
540
17.0
3
0.1
17
0.5
3
0.1
24
0.8
2
0.1
3,178
BCLP
1,145
80.7
260
18.3
2
0.1
3
0.2
1
0.1
7
0.5
-
-
1,418
Non specified
106
26.9
175
44.4
17
4.3
21
5.3
25
6.3
22
5.6
28
7.1
394
2019
385
44.7
371
43.1
51
5.9
19
2.2
17
2.0
16
1.9
2
0.2
861
CL
141
69.1
59
28.9
3
1.5
1
0.5
-
-
-
-
-
-
204
CP
7
2.0
254
73.8
44
12.8
15
4.4
11
3.2
12
3.5
1
0.3
344
UCLP
154
87.0
20
11.3
-
-
2
1.1
-
-
1
0.6
-
-
177
BCLP
73
92.4
4
5.1
1
1.3
-
-
1
1.3
-
-
-
-
79
Non specified
10
17.5
34
59.6
3
5.3
1
1.8
5
8.8
3
5.3
1
1.8
57
6,368
43.3
6,083
41.4
289
2.0
816
5.6
385
2.6
445
3.0
312
2.1
14,698
NOTE: Totals for timing of diagnosis by year(s) are presented along the top row for each grouping of years and overall total (gray lines).